Resources Related to Hereditary Breast & Ovarian Cancer

Local Resources in Greater Phoenix Area

Cancer-Resources

Cancer Centers Providing Genetic Services in the Greater Phoenix Area (Click Here)

BRCATeers – Call Cary at 602-406-8841 or Katherine at 480-301-4585, for more info. Founded in 2005 by a group of genetic counselors from the greater Phoenix area, this group is committed to providing a forum for individuals who test positive for a mutation in the BRCA genes. This group meets approximately five times a year to discuss issues related to carrying a BRCA mutation. Individuals who attend this group have already tested positive for a BRCA 1 or BRCA 2 mutation or have a family member who has tested positive.

FORCE (Facing Our Risk of Cancer Empowered)www.facingourrisk.org –A  national nonprofit organization dedicated to fighting hereditary breast and ovarian cancer. The local outreach group connects members for support, education, advocacy, research and fundraising specific to hereditary cancers. FORCE programs serve anyone with a BRCA mutation or a family history of cancer. Local meetings are held quarterly. Sign up at www.facingourrisk.org/phoenix. Local outreach coordinators can be reached at rachelh@facingourrisk.org or lisae@facingourrisk.org.

Susan G. Komen for the Cure – Phoenix Affiliate
www.komenphoenix.org – engaged in year-round activities including advocacy, community outreach, providing support to survivors and their families, and granting funds to community organizations for education, screening and treatment of uninsured and under-insured individuals. The Komen Phoenix Service area includes the 9 counties of Maricopa, Apache, Coconino, Gila, La Paz, Mohave, Navajo, Pinal and Yavapai.

Cancer Support Community Arizonawww.cscaz.org – provides the only comprehensive Program of psychosocial support and services to people diagnosed with cancer, their friends and families in the state of Arizona. The Program consists of services in multiple areas including Support Services, Healthy Lifestyle Activities, Educational Seminars, Social Connections and Resources and Referrals. CSCAZ provides these services for every cancer, at every stage and for anyone who has been impacted by the diagnosis. Our services are evidence based, professionally facilitated and provided at no cost to our participants. Through participation in our Program, people affected by cancer learn vital skills that enable them to regain control, reduce isolation and restore hope regardless of the stage of disease.

Organizations Addressing Cancer Genetics

Sharsheretwww.sharsheret.org – Sharsheret, Hebrew for “chain”, is a national not-for-profit organization supporting young women and their families, of all Jewish backgrounds, facing breast cancer. Sharsheret provides national expertise and free culturally-sensitive resource materials (downloadable on their web site). The Jewish Genetic Diseases Center participates in the Sharsheret Supports program.

Sharsheret’s Peer Support Network connects women newly diagnosed or at high risk of developing breast cancer or ovarian cancer one-on-one with others who share similar diagnoses and experiences. An individual can also share her own experience by becoming a Sharsheret “Link”, a peer supporter, and enjoy the rewarding experience of supporting other women across the country. There are a variety of programs addressing all aspects of living with breast cancer.

Bright Pinkwww.bebrightpink.org – is the only national non-profit organization focusing on the prevention and early detection of breast and ovarian cancer in young women, while providing support for high-risk individuals. They are passionate about enlightening and empowering young women to be proactive with their breast and ovarian health

Chicago Center for Jewish Genetic Disorderswww.jewishgenetics.org – provides education and programming to the Jewish, professional and general communities. Their mission is to empower community members to seek out information and prevention strategies for Jewish genetic disorders and hereditary cancers. A close organizational partner, they have a robust web site, and we encourage you to explore their sections on diseases, resources and links, ethics, and advocacy.

Hadassahwww.hadassah.org/checkitout – Check It Out® for Adults is a breast cancer awareness program for women and men of all ages that is focused on disease prevention and screening for the purpose of early detection and treatment.

National Society of Genetic Counselorswww.nsgc.org – provides resources and tools for learning more about genetic counseling and genetic health and understanding family history. This is a great site for assistance in finding a local genetic counselor.

NCI Cancer Genetics Services Directorywww.cancer.gov/cancertopics/genetics/directory – The National Cancer Institute directory lists professionals who provide services related to cancer genetics (cancer risk assessment, genetic counseling, genetic susceptibility testing, and others).

The Program for Jewish Genetic Health – www.einstein.yu.edu/centers/jewish-genetic-health – Addresses all genetic health issues relevant to Jews, with the ultimate goal of protecting the health of the current Jewish community and its future generations. Their BRCAcommunity.com website serves as a resource to help educate the Jewish community about BRCA-related hereditary breast and ovarian cancer. In addition, their MyJewishGeneticHealth.com free online educational series is designed to educate people about hereditary breast and ovarian cancer and other health conditions that affect the Jewish community. The website is free to registered members, who will receive email updates when new lessons or additional content is added; topics including diseases, medical conditions, genetic technologies and bioethical issues.

The Basser Research Center for BRCA – www.basser.org – The Basser Research Center for BRCA provides education and support for individuals and families with BRCA1 and BRCA2 mutations. Our mission is to deliver cutting edge research in basic and clinical sciences to advance the care of individuals who carry BRCA mutations.

Breast Cancer Organizations

Breastcancer.org www.breastcancer.org
Dr. Susan Love Research Foundation www.dslrf.org/index.asp
John W. Nick Foundation www.malebreastcancer.org
Living Beyond Breast Cancer www.lbbc.org
National Breast Cancer Coalition www.natlbcc.org
National Breast Cancer Foundation www.nationalbreastcancer.org
SHARE (Self-Help for Women with Breast or Ovarian Cancer) www.sharecancersupport.org
Susan G. Komen for the Cure www.komen.org
Y-ME National Breast Cancer Organization www.y-me.org
Young Survival Coalition www.youngsurvival.org

Ovarian Cancer Organizations

Gilda Radner Familial Ovarian Cancer Registry www.ovariancancer.com
Gynecological Cancer Foundation www.thegcf.org
National Ovarian Cancer Coalition www.ovarian.org
Ovarian Cancer National Alliance www.ovariancancer.org
Ovarian Cancer Research Fund www.ocrf.org